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Patient Engagement Task Force Members
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Carol Cronin
Carol founded the Informed Patient Institute in 2007. Prior to this, she worked as a consultant and advisor to non-profit organizations, foundations and government agencies including the California Endowment, AARP, Atlantic Philanthropies, the Markle Foundation, and the Robert Wood Johnson Foundation. Carol was Director of the Center for Beneficiary Services at the Health Care Financing Administration (HCFA – now CMS) from 1998 to 2000, where she was responsible for the launch of www.medicare.gov, 1–800 MEDICARE and numerous other outreach and education programs. Prior to HCFA, she was Senior Vice President for Health Pages, a New York City–based consumer health information website, and worked in leadership positions at the Washington (now National) Business Group on Health. She serves on the Boards of the National Quality Forum, the Patient Voice Institute, the Citizen Advocacy Center, chairs the Joint Commission's Patient and Family Advisory Council and serves on the Johns Hopkins Hospital Patient and Family Advisory Council. She also serves as President of the Judy Family Foundation. She holds an A.B. degree from Smith College and two Masters degrees in Social Work and Gerontology from the University of Southern California. 
Joanne Disch
Joanne Disch is Professor ad Honorem at the University of Minnesota School Of Nursing and is the retired director of the Katharine J. Densford International Center for Nursing Leadership. She has held numerous national leadership positions, including board member and chair of the board for AARP, president of the American Association of Critical-Care Nurses, chair of the University Healthcare Consortium’s Chief Nurse Executive Council, and chair of the American Nurses Association's Committee on Nursing Practice Standards and Guidelines. Currently, she is Chair of the Chamberlain College of Nursing Board of Trustees, Chair-elect of the board of directors for the Aurora Health System, and serves on the advisory boards for a number of other national organizations.  She is a fellow in the American Academy of Nursing and served as its president (2011 – 2013).

Dr Disch was a founding developer of the QSEN (Quality and Safety Education for Nurses) initiative which was funded by the Robert Wood Johnson Foundation for 10 years, to (1) identify the competencies and knowledge, skills and attitudes (KSAs) needed by all nurses for safe nursing practice; and (2) to disseminate this content to nursing faculty throughout the United States.  The six competencies were patient-centered care, teamwork and collaboration, evidence-based practice, quality improvement, informatics and safety.  By the end of the project, more than 1200 faculty in 49 states had been educated and were working to transform their curricula to include this content.  More recently, Dr. Disch was a co-editor with Jane Barnsteiner and Mary Walton of Person and Familly-Centered Care, a text that offers a more contemporary approach to the traditional concept of patient-centered care.
Matt Wesley
My name is Matthew Wesley, I’m a fourth year medical student at Dartmouth’s Geisel School of Medicine.  Medical education will be a central part of my career, as I plan to work as a hospitalist in an academic medical center.  I’ve been fortunate to have the opportunity to teach at Dartmouth in courses on physical diagnosis and gross anatomy. Outside of medicine, I enjoy fishing and nature photography.
Meg Gaines
Martha E. “Meg” Gaines, JD, LLM founded and directs the interdisciplinary Center for Patient Partnerships at the University of Wisconsin. The Center’s mission is to engender effective partnerships among people seeking health care, people providing health care, and people making policies that guide the health care system. The Center trains future professionals of medicine, nursing, law, health systems, industrial engineering, pharmacy and other disciplines together to provide advocacy services to patients with life-threatening and serious chronic illnesses in a transdisciplinary environment.

Ms. Gaines’ work focuses on consumer engagement and empowerment in health care reform where she has been privileged to collaborate with the Josiah Macy Jr Foundation, the Robert Wood Johnson Foundation, the Kaiser Family Foundation, and the National Cancer Institute among others.  She serves on the National Cancer Research Advocates of the NCI, recently co-chaired the Josiah Macy Jr Foundation annual conference on engaging patients in linking health care and health professional education reform, and co-authored the conference paper for the joint Arnold P. Gold & Schwartz Foundations conference on advancing compassionate, collaborative care.  Her publications include “Engaging Patients at the Front Lines of Primary Care Redesign: Operational Lessons for an Effective Program,” “Alchemy: Medical Mediation at Its Best,” “A Social Compact For Advancing Team-Based High-Value Health Care,” and “Medical Professionalism from the Patient’s Perspective: Is There an Advocate in the House?”

Distinguished Clinical Professor at the University of Wisconsin Law School, Ms. Gaines teaches courses related to consumer issues in health care, health care advocacy, health care reform, and patient-centered care to graduate students from law, medicine, public health, nursing, pharmacy, genetic counseling and others. Ms. Gaines earned her bachelor’s degree at Vassar College and holds Juris Doctorate and Master of Law degrees from the University of Wisconsin Law School. She is a long term survivor of metastatic ovarian cancer.
Mary (Dicey) Jackson Scroggins
Mary (Dicey) Jackson Scroggins, MA, a 19-year ovarian cancer survivor and health activist, is a writer, producer, and founding partner in Pinkie Hugs, LLC—a mother-daughter writing and film production firm specializing in social justice-focused documentaries. She is also a co-founder of In My Sister’s Care, an organization focused on improving gynecologic cancer awareness and care for medically underserved women and on eliminating health disparities. 

Mary is a member of the Board of Directors of the GOG Foundation and of NRG Oncology Foundation and a member of the Executive Committee for the “Globe-athon to End Women’s Cancers,” the Leadership Committee for MD Anderson Cancer Center’s “Women’s Cancer Moon Shots Program,” the Institute of Medicine’s Committee on the State of the Science in Ovarian Cancer Research, the Ovarian Cancer National Alliance’s (OCNA’s) Research Advocacy Committee, and NCI’s Cancer Prevention and Control Central IRB and its Investigational Drug Steering Committee. She is also chair of the NRG Patient Advocate Committee, the Advocate Advisory Board of a DOD-funded project focused on finding the characteristics of long-term ovarian cancer survival, and the Advocates’ Stakeholder Advisory Board of a PCORI-funded program developing a patient-centered aid for treatment decision-making. 

Previously, Mary was a co-chair of the Eighth (2015) AACR Conference on The Science of Cancer Health Disparities, a director of The Pathways Project (an organization that puts people at the center of health care research and delivery), a member of NCI’s Gynecologic Cancers Progress Review Group and Gynecologic Cancer Steering Committee, a faculty member of the annual AACR/ASCO Methods in Clinical Cancer Research Workshop, a co-chair of NCI’s Patient Advocate Steering Committee, a member of the OCNA Board of Directors, and a peer reviewer and integration panel member for the DOD Ovarian Cancer Research Program. 
Mila Grossman
My name is Mila Grossman, and I am originally from Madison, Wisconsin. I attended Georgetown University, where I majored in Health Care Management and Policy and minored in Spanish. As an undergraduate student I participated in various activities that helped me cultivate a strong interest and foundation in patient safety and quality improvement. For example, I was a member of Georgetown’s chapter of the Institute for Healthcare Improvement (IHI) Open School. In this program I had the opportunity to enroll in several online patient safety courses and worked on a multidisciplinary project with a group of medical students, health administration students, physicians and nurses aimed at improving the hospital medicine discharge process. 

After graduation from Georgetown, I worked at Sg2, a Chicago consulting firm that provides strategic direction to health care systems. This experience challenged me to learn about best practices in care delivery, system design, innovative payment models and patient engagement. It also solidified my desire to pursue medical school. In May 2014 I completed the Post-Baccalaureate Premedical Program at Goucher College and subsequently began my medical education at the University of Chicago Pritzker School of Medicine. I am currently finishing my second year of medical school and am a member of Pritzker’s Quality and Safety research track. 
Barbara Lewis
Barbara Lewis launched a three-decade career first as a journalist writing for numerous national publications from The Wall Street Journal to Modern Healthcare and the British Medical Journal. She worked as an on-camera consumer, health and safety reporter for an ABC television affiliate. Barbara returned to school, obtaining an MBA from the UCLA Anderson School of Management, where she has taught Business Communications and where she currently lectures on primary research.

After receiving her MBA, Barbara set the stage for act two of her career, founding a marketing consulting firm. Act three of Barbara’s career began when she wrote Joan’s Family Bill of Rights about her sister’s experience in the ICU. The feedback she received prompted her to decide to devote the rest of her life to improving the patient experience. Since 2013, Barbara has researched patient and family advisory councils (PFACs) and their impact on hospitals. She is a frequent speaker at international conferences on her PFAC research.

Barbara is Co-chair of the Beryl Institute’s Global Patient & Family Advisory Council and of the Kaiser Permanente Regional Member Advisory Council. She served as a member of Orthopaedic Hospital’s Institutional Review Board (IRB) for seven years. Since June 2014, Barbara has been the Managing Editor of DocCom, an on-line communication skills learning program co-founded by AACH. 

Barbara is the author of the book Get a Black Belt in Marketing, based on her black belt in karate.
 

Nan Cochran
Nan Cochran, MD, FAACH is an Associate Professor of Medicine at the Geisel School of Medicine at Dartmouth and the Dartmouth Institute for Health Policy and Clinical Practice, and an internist and geriatrician at the VA Medical Center in White River Junction, Vermont. After undergraduate work at Harvard, she received her MD at Harvard Medical School, and completed residency training in Primary Care Internal Medicine at the University of Washington. She designed and directs the clinical skills course, and is co-leading the clinical longitudinal curriculum redesign effort at Geisel. As a faculty member of the American Academy on Communication in Healthcare, she does faculty development and training in the areas of conflict management and negotiation, shared decision making and motivational interviewing. She lives in Vermont with her husband, Elliott Fisher and they have 3 wonderful daughters, Allegra, Kate and Josie. She loves to spend her free time in the wilderness with her family and friends and to x-c and telemark ski, bicycle, play ice hockey and tennis, garden and read.

Elliot Barsh
I have my BA from NYU, graduating in 1980.
MD from NYU, graduating in 1984
Internship and residency in Pediatrics Albert Einstein College of Medicine and Montefiore Medical Center, 1984-1987.
Chief Residency in Pediatrics at The Bronx Lebanon Hospital Center 1987-1988.
Pediatrician at the Mount Kisco Medical Group 1988-present.  
Physician and provider coach 2012-present at the Mount Kisco Medical Group.
Director of Patient Experience, the Mount Sinai Health System at the Mount Kisco Medical Group.
Physician coach Northern Westchester Hospital Center 2015-present.
Vineet Arora
Vineet Arora MD MAPP, a board certified internist, is an academic hospitalist, Assistant Dean of Scholarship & Discovery, and Director of GME Clinical Learning Environment and Innovation at University of Chicago.  In the latter role, she bridges educational and hospital leadership to integrate residents and fellows into the quality, safety, and value missions of the institution. Through AHRQ, NIH, and ABIM Foundation funding, she has developed and evaluated novel interventions that combine systems change with adult learning theory to improve care and learning in teaching hospitals.  She has authored over 100 peer-reviewed publications, with coverage in the New York Times, NPR, and the Associated Press.  

She currently serves on the Board of Directors for the American Board of Internal Medicine.  As the Director of Educational Initiatives at Costs of Care, she co-chaired the Teaching Value Choosing Wisely Challenge and co-authored Understanding Value-Based Healthcare, from McGraw Hill.  For her work, she has received the American College of Physicians Walter J. McDonald Young Physician Award, the Society of Hospital Medicine’s Excellence in Hospital Medicine Research Award, and the Society of General Internal Medicine’s Fred Brancati Leadership and Mentorship Award.  In 2011, she was named to “20 People Who Make American Healthcare Better” by HealthLeaders Magazine.  

Dr. Arora earned her medical degree at the Washington University in St. Louis and completed her residency, chief residency, and Masters in Public Policy at the University of Chicago. Dr. Arora regularly tweets about medical education, technology, and health policy at @futuredocs.
Michelle Johnston-Fleece
Michelle Johnston-Fleece, MPH is a Senior Program Officer for the National Academy of Medicine's Leadership Consortium for Value & Science-Driven Healthcare, where she supports the Care Culture and Decision-Making Innovation Collaborative, the Patient and Family Leadership Network and the Executive Leadership Network.

Prior to NAM, Michelle was an Engagement Officer at the Patient-Centered Outcomes Research Institute (PCORI).  In that role she managed the patient and stakeholder engagement activities within the Improving Healthcare Systems portfolio of clinical comparative effectiveness research projects, collaborating closely with PCORI staff, funded investigators, patient, caregiver and stakeholder partners including health systems, business, payers and policymakers, as well as the community at large to support meaningful patient and stakeholder engagement in research, and to advance high-quality, evidence-based healthcare and improve patient-centered outcomes.

Michelle has worked to advance patient and family engagement in healthcare delivery for over a decade. She has served as the director of policy and advocacy at Cancer Support Community (CSC), where she oversaw the policy and advocacy activities at the federal level and in coordination with CSC’s local affiliates across the United States. Michelle also led the patient advocacy and patient experience improvement efforts for Einstein Healthcare Network, a large, urban, safety net healthcare system in Philadelphia. Before that, she was the Senior Policy and Research Analyst at the American Board of Internal Medicine and ABIM Foundation, where she was responsible for providing research, policy analysis, writing and project management for numerous ABIM and ABIM Foundation initiatives.  During her time at ABIM and ABIM Foundation, Michelle led the organizations’ efforts to engage patients, caregivers and consumers into program development and mulistakeholder convening meetings. 

Michelle's advocacy work was inspired by personal experience as the primary caregiver for her husband for five years until his death in 2004. As a volunteer, she has served on the Board of Directors of the National Coalition for Cancer Survivorship, the Novartis Oncology External Patient Workgroup and the American Academy on Communication in Healthcare Patient Engagement Task Force. In addition, she wrote the "Caregiving with Confidence" column for Cancer Today, a publication of the American Association for Cancer Research, for over two years.

Michelle holds a master of public health degree with a focus in health systems and policy from the UMDNJ School of Public Health (now known as Rutgers School of Public Health) and received her bachelor’s degree in sociology and media studies from New York University. 
Lucian Leape
Lucian Leape has recently retired as Adjunct Professor of Health Policy in the Department of Health Policy and Management at the Harvard School of Public Health.  Prior to joining the faculty at Harvard in 1988, he was Professor of Surgery and Chief of Pediatric Surgery at Tufts University School of Medicine.  He is a graduate of Cornell University and Harvard Medical School.   

Dr. Leape is internationally recognized as one of the early leaders of the patient safety movement, starting with the publication in JAMA of his seminal article, Error in Medicine, in 1994.  His subsequent research demonstrated the success of the application of systems theory to the prevention of adverse drug events. He has led initiatives to improve disclosure and apology after adverse events, improve assessment of physician performance, and create a respectful culture in health care. He has published over 150 papers and monographs on patient safety and quality of care. 

Dr. Leape was a member of the Institute of Medicine committee that published “To Err is Human” in 1999 and “Crossing the Quality Chasm” in 2001.  He is a recipient of the John Eisenberg Patient Safety Award from the JCAHO and National Quality Forum. In 2006, Modern Healthcare named him as one of the 30 people who have had the most impact on healthcare in the past 30 years.  In 2007, the National Patient Safety Foundation established the Lucian Leape Institute to further strategic thinking in patient safety. 

Martha Hayward
Martha Donovan Hayward joined the Institute for Healthcare Improvement (IHI) in March 2011 as the Lead for Public and Patient Engagement.  The focus of her work at IHI is to bring patients and families into the design of all work at IHI to accelerate improvement of health care delivery.   A cancer survivor herself, she is a founding board member of the nonprofit Women’s Health Exchange and served on the Patient and Family Advisory Council of Dana-Farber Cancer Institute in Boston.  Prior to joining the health care world Martha enjoyed a 20 year career  communications, marketing and fundraising in the areas of health, politics, and education. In her role at IHI, she speaks and teaches programs including Patient Safety Officer Training, Executive Development, Strategic Partners and Patient Experience Seminars.   Martha has offered keynote addresses on the subjects of Patient and Family Centered Care, Patient Engagement, and End of Life Care to local, regional and national audiences.
Ty Blair
Ty Blair is a project manager, facilitator and healthcare consultant with an emphasis in the communication between patients and healthcare professionals and systems, the development of empowered communication skills for patients and the honing of relationship centered communication skills for healthcare professionals.   Currently Ty works with a Health and Healing agency in San Francisco that focuses on improving health disparities for underserved communities including the development and implementation of a “Patient Navigation” initiative largely focused on improving communicative relationships between Healthcare Professionals /Systems and the Patients/Potential Patients that are served.   Ty has worked for nearly a decade with both Stanford University and the University of California San Francisco as a Standardized Patient and Trainer, working with medical students and other healthcare students in their training and development to become better communicators as well as caring emotionally intelligent providers.   Ty also facilitates panels, circles and discussion groups within a California prison, groups of the formerly incarcerated, other disenfranchised groups and privileged communities focused on the navigating of difficult conversations, addressing historical harm and trauma, cultural competency work, mindfulness and restorative justice practices with the aim of collective healing through thoughtful and mindful communication. 
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