Michelle Johnston-Fleece, MPH is a Senior Program Officer for the National Academy of Medicine's Leadership Consortium for Value & Science-Driven Healthcare, where she supports the Care Culture and Decision-Making Innovation Collaborative, the Patient and Family Leadership Network and the Executive Leadership Network.
Prior to NAM, Michelle was an Engagement Officer at the Patient-Centered Outcomes Research Institute (PCORI). In that role she managed the patient and stakeholder engagement activities within the Improving Healthcare Systems portfolio of clinical comparative effectiveness research projects, collaborating closely with PCORI staff, funded investigators, patient, caregiver and stakeholder partners including health systems, business, payers and policymakers, as well as the community at large to support meaningful patient and stakeholder engagement in research, and to advance high-quality, evidence-based healthcare and improve patient-centered outcomes.
Michelle has worked to advance patient and family engagement in healthcare delivery for over a decade. She has served as the director of policy and advocacy at Cancer Support Community (CSC), where she oversaw the policy and advocacy activities at the federal level and in coordination with CSC’s local affiliates across the United States. Michelle also led the patient advocacy and patient experience improvement efforts for Einstein Healthcare Network, a large, urban, safety net healthcare system in Philadelphia. Before that, she was the Senior Policy and Research Analyst at the American Board of Internal Medicine and ABIM Foundation, where she was responsible for providing research, policy analysis, writing and project management for numerous ABIM and ABIM Foundation initiatives. During her time at ABIM and ABIM Foundation, Michelle led the organizations’ efforts to engage patients, caregivers and consumers into program development and mulistakeholder convening meetings.
Michelle's advocacy work was inspired by personal experience as the primary caregiver for her husband for five years until his death in 2004. As a volunteer, she has served on the Board of Directors of the National Coalition for Cancer Survivorship, the Novartis Oncology External Patient Workgroup and the American Academy on Communication in Healthcare Patient Engagement Task Force. In addition, she wrote the "Caregiving with Confidence" column for Cancer Today, a publication of the American Association for Cancer Research, for over two years.
Michelle holds a master of public health degree with a focus in health systems and policy from the UMDNJ School of Public Health (now known as Rutgers School of Public Health) and received her bachelor’s degree in sociology and media studies from New York University.